Transforming Pediatric Oncology Across All Regions of Romania
Bucharest, October 16, 2023 – In a significant step toward improving the survival rates of children diagnosed with onco-hematological diseases in Romania, Sqilline is delighted to announce a strategic partnership with the Dăruiește Aripi Association and the Romanian Society of Pediatric Oncology and Hematology (RSPOH).
This collaboration aims to transform Romanian National Pediatric Onco-Hematology Registry data into meaningful analyses to support the development of pediatric onco-hematology care in Romania.
Numbers and Finding
The primary focus of this partnership is to provide RWD analysis for an updated and comprehensive epidemiological evaluation of child cancer in Romania as well as to evaluate the progress in the overall survival of children diagnosed with oncological diseases in Romania, by successive diagnostic cohorts.
The number of patients in the registry is 5638 and it includes all the new cancer cases in the 0–19-year-old Romanian population, since 2010. The current survival analysis is conducted only for cases diagnosed from 2010 to 2017. The rationale behind this comparison lies in the necessity for at least five years to have passed since the last diagnosis to yield meaningful insights.
Sqilline’s advanced analytic software, Danny Platform, will structure the registry data and analyze the improvements in overall survival at one, three-, and five-years post-diagnosis, including disease-specific levels as well as specific survival rates by tumor type, age group and area of residence, thus enabling the identification of the specific issues that need improvement and investment.
Danny Platform integrates massive amounts of Real-World Data (RWD) from various hospital sources (EHRs, laboratories, registries, etc.). Using Machine Learning (ML) and Natural Language Processing (NLP) algorithms, Danny Platform extracts both structured and unstructured (free text) data to preprocess, normalize and ensure high data quality. This is the first and most important step to generate Real-World Evidence (RWE) in practice.
Danny Platform Features
- Embedded Natural Language Processing (NLP): transforming unstructured data into structured, actionable insights.
- Survival Analysis Dashboard: providing insights into patient outcomes and intervention effectiveness based on specific factors.
- Cloud Data Security: Ensuring data security and privacy.
- Efficient Registry Management: simplifying the management and structuring of thousands of patient records within the registry.
- Unlocking Real-World Insights: gaining unparalleled insights from real-world evidence of leukemia treatment in children.
- EU Research Collaboration: facilitating participation in various EU Research Project Programs and initiatives.
- Cost Savings: eliminating the need for an in-house data science team.
This partnership marks an important moment in the journey to further develop pediatric oncology care in Romania, introducing advanced technology to drive meaningful change in the lives of young patients and their families.
About Dăruiește Aripi Association
The Dăruiește Aripi Association is on a mission to bring about transformative changes in the public healthcare and education systems, changes that profoundly impact the lives of children and their families. Positioned at the intersection of hospital infrastructure development, equipment procurement, and systemic change, the association is dedicated to revolutionizing the care provided to pediatric oncology patients in Romania.
Sqilline is a leading technology and real-world data company for Central Eastern Europe. Our commitment lies in delivering top-tier solutions and expertise across the fields of Data Analytics, ML/NLP algorithms, and AI within the Healthcare sector.
Sqilline’s data analytics proficiency empowers an array of stakeholders, including hospitals, physicians, patients, researchers, pharmaceutical companies, and reimbursement agencies. Our mission is to provide valuable insights into real-world patient care, aligning perfectly with the contemporary focus on value-based healthcare.